GANES

News & Events

Our General Goals:

Build a regional network along the east coast of parents/families/individuals affected by galactosemia
Raise community awareness of galactosemia through outreach
Educate individuals, families, providers and the community about galactosemia, its treatment, and complications.
Advocate for individuals affected by galactosemia
Support research of galactosemia to improve the diagnosis, treatment, life-long management, and to find a cure
Fund-raise to support established goals